The Stroke Survivors & Injured Brains - collaboration

[t-bob]

This is excerpt article - collorabation (sp?) collaboration


Everyone’s mind is affected by everything. People who label us (stroke survivors) by saying this or that part of ourselves have been affected by stroke are accurate. Of course we have been affected. They have been affected by the jobs the do and the health choices they make and never-ending other things.

Whose been affected by what is hardly the point. People who feel compelled to label us in this way are afraid and putting their fear into a label.

You will never, ever be able to change their labeling. And trading one label for another, convincing them to use this label rather than that one, isn’t going to change the fact that they will label and criticize.

It’s what people do.

I have been profoundly changed by my stroke. My brain and my mind have been changed. And, guess what! I am kinder and wiser because of that change.

Getting someone who has not had a stroke to understand the reality of stroke has never been possible, in my experience.

They look at the outside clues and make up stories. That too is what human beings do.

[t-bob]

My senses got better and I lost one physical sense.


I had hearing aids. I didn't need it.
My eyes got better. I was 20/10 then 20/5
And I also figured out how to do sketch. I couldn't sketch before the stroke

I can't taste food - nada. When I burp, I can taste the meal. I can taste one thing - only for about ten seconds. I eat a banana and I can eat one good taste then it was gone - the tongue taste.

My humor got a little better as well

[james]

Long may you enjoy the good things Bob!

[t-bob]

Rewrite - Injured Brain and Stroke

Anonymous Writer - “You are welcome to use my words, and, as you see, I prefer not to be quoted. Rewrite it anyway you like and claim it in whatever fashion makes sense to you. “


Everyone's brain is constantly changing every minute of every day.   Everyone’s brain is affected by everything that happens to them.   A stubbed toe affects the brain.   The movies we watch affect the brain.   The joy or the anger we experience affect the brain.  The loss of a job or a loved one affects the brain

People who say that a stroke survivor's brain has been affected by stroke are accurate.  Of course stroke survivors' brains have been affected by stroke, just as people who never experienced a stroke have been affected by the jobs they do and the health choices they make and never-ending other things.

A stroke is a brain injury.  Any part of the brain can be affected by stroke.  It is impossible for another person who has not had a stroke to look at the behavior of a person who has had one and determine how the stroke survivor's brain has been affected, unless that person is a medical professional trained in stroke.  And even then it's very difficult.   Anyone who thinks they understand a survivor by what they see or hear and then labels stroke survivor as "this" or "that" will not be accurate.    

And the assumption that the brain injury has "broken" the stroke survivor or diminished them in some way is completely wrong.  

I have been profoundly changed by my stroke. My brain and my mind have been changed by all these things.   And, guess what!   I am kinder and wiser, stronger and more useful because of those changes - all of them.   

We look at the outside clues that people show and make up stories.  The stories are just stories.  Making up stories is what human beings do.   But, if we are wise, we can slow down, let go of the stories and learn.

[Deleted]

The TBI altered my reality, cognition, and behavior.
Rough ride for me, friends, and family.